Alzheimer Europe
Alzheimer Europe (AE) is a non-governmental organisation (NGO) aiming to raise awareness of all forms of dementia. Formed in 1990, AE is based in Luxembourg and operates a common European platform through co-operation among its 37 members, which are all active Alzheimer's disease organisations in Europe (WHO European Region).
AE is a lobbying organisation promoting dementia awareness, care and research within the EU institutions. This effort includes the European Alzheimer’s Alliance, a group of more than 110 MEPs in the European Parliament that aims to make dementia a public health priority.
AE is also a source of information on all aspects of dementia through its yearbooks, magazine and monthly e-newsletter.
AE is active in many European projects funded by the Innovative Medicines Initiative (IMI) and Horizon 2020.
In 2012, AE set up a European Working Group of People with Dementia (EWGPWD), composed of people with various forms of dementia and of various ages and nationalities. The EWGPWD advises AE’s board (through the Chair of the EWGPWD, who is a full board member) and participates (either as a group or as individual members) in all AE’s activities and projects.
AE also organises ethical reflection and develops ethical guidelines and positions on topics of relevance to the rights and wellbeing of people with dementia through the European Dementia Ethics Network (EDEN), which it established in 2009.
AE organises annual conferences all over Europe, which are attended by people with varied backgrounds in dementia, including people with dementia and their carers, representatives of national Alzheimer's disease associations, healthcare professionals, academics and researchers, as well as policy makers.